What CAN you do? – Part 2

Last week I shared with you my first step in focusing on what you can do rather than what you can’t. The next step in the process of asking yourself what CAN you do is to ask yourself what you are already doing that you could put more of your energy into.

There are a few reasons this helps:
1. It gives you a purpose and that gives your life meaning.
2. It allows you to put your focus more on positive things.
3. The less free time you give yourself, the less time you will find your mind wandering to negative thoughts.
4. The less free time you have, the less time you have to dwell on what you can’t do because you’re doing great things!
5. The more you do for others, the more joy you will feel and the more you will know you are not useless!

In order to put more of your focus or time into things that give your life more meaning, you may need to focus less on things that don’t. Do you have a task you’ve taken on that you don’t need to be doing? Did you start a side business, but have no energy for it? Have you been doing something you thought you needed to continue, but the Lord has been asking you to give it up? Now would be the time to review and make changes in order to do more of what already brings you joy and gives joy to others.

To that end, what are you doing now that you could put more of your energy and focus into?
1. Job?
2. Kids?
3. Church?
4. Online ministry?
5. Online business?
6. Art?
7. Writing?
8. Blogging?

Well, that’s it for step two. I’ll be back next week with step three!

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What CAN You Do? – Part 1

Chronic illness takes so much away from you that your thoughts often dwell on what you can’t do anymore. I can’t work. I can’t go out today. I can’t clean the house. I can’t do for my kids. I can’t help the church. I can’t help a friend. I can’t feel useful. And that right there is the cause of sadness and even deep depression.

But it doesn’t have to be. I’ve felt that way myself, but I have developed some habits that have helped me to get out of that funk and feel useful which, in turn, increases the joy I feel day to day.

It all started with a question I asked myself. “What CAN you do?” You see, I had many times when I felt like I was too tired to DO anything. Too brain fogged to THINK of anything. Too overwhelmed to make any sense. And yet, I always found SOMEthing I could do that would make a difference, that would be positive, that would be of value to…someone, anyone.

There are four parts to this process and I’m going to cover one part per week this month. The first step is to think less about what you can’t do and more about what you CAN do. It sounds simple. It’s not. It is the hardest step in the process, but it’s worth every effort.

So many devotionals I’ve read and so many of the PMA books out there are like the Just Say No campaign. Just think positive. Just be thankful. People have it so much worse than you! Well, it may be true, but it isn’t helpful, especially when you’re in the throws of despair or you are still grieving the loss of your old life.

But there are several things that can help you to begin to think this way and here they are in no particular order. Do the ones that speak to you. Use the ones that you can and see if you can start others later as you begin to heal from the overwhelm.

  1. Start a gratitude journal
    You don’t have to publicize it. Just write down one thing each day that you are grateful for. One new item each day. Then, after a week, look back on it. After a month, after a year… The more you see in your journal, the more you realize just how blessed you are even if you do have big things to deal with.
  2. Find the humor in life’s other struggles
    I can’t tell you how many times I have had little weird things happen. These little weird things didn’t always seem really little to me at the time. But later on, I found them to be much smaller than the illnesses and conditions I face and so I now see them as not as important. I see them more as inconveniences that are kind of funny…sometimes at the time!
  3. Compare the size of the other struggles to your big ones
    If you can’t find the humor in the other struggles that come along or you still get upset when things are compounded by all life’s glitches, you can try comparing the big struggles to the little short-lived ones.

    You’re already tired and in pain, but you go to the kitchen to make dinner for your family and the oven knob falls off in your hand. You pick up the pot and the handle falls off. About this time, you’re probably thinking that someone is out to get you.

    You’re frustrated and angry, but what if you could stop and think about the size of these issues as compared with your bigger struggles, the size of your love for your family, and the blessings you have despite the problems you are in? What if you looked around and asked yourself, “Where’s Alan Fundt? Am I on Candid Camera? What if you saw the humor in it. What if you skipped to the part where you put the handles back on and that problem was solved?
  4. Think about how the Lord might be leading you to better things
    My husband was fired several years ago from a job we moved to Indiana for. We had to move out of the house we were going to buy. Because of that move, my new doctor wanted to check to see if a huge fibroid I had in my uterus was still there–even though in all likelihood, it was gone due to my age. The fibroid was gone, but a cyst on my ovary was found instead. Surgery to remove that cyst and the fallopian tube attached to it revealed a rare and aggressive cancer in its infancy.

    If it were not for that series of events starting with that job loss, I’d be dead now. Sometimes bad things lead to good things. Sometimes we are privileged to know about them. Sometimes we are not. So, if you don’t see it, just think about how it MIGHT have benefited you. It sure did for me!

Remember, this is the step that takes the most time, but the good news is that you can do them simultaneously with the other steps…which I will discuss in the coming weeks.

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Autism Bonuses

I had intended to make this a four-part series, but after completing the last part of what my son calls Shock and Awe-tism, I wanted to include some links for more Autism information and some inspiration as well as some ideas and food for thought.

Sometimes a pet can help calm…

Here’s an article about a book advocating the benefits of not keeping your ASD child in their comfort zone. We did this a bit with our son and it seemed to work for him. He would scream and hold his ears when in situations that were loud. Loud to him was a restaurant or church service. Sometimes we had to be in a loud environment and we tried to calm him by giving him a handheld electronic game to help him focus and that seemed to tune out the outside noise.

Once when he was very young, we went to a Fourth of July Fireworks show. On the way home he said, “It changed my brain.”

Here’s what the article says about this book: “A new autism book, The Loving Push, encourages parents to gently and lovingly nudge children on the spectrum to perform activities outside their comfort zone. This book is written by Dr. Temple Grandin, a leading spokesperson on autism, as well as psychologist Debra Moore.

1st Woman With Autism Passes Bar!

Dear Mom of High Functioning Autism article rang true for me with my son. I found many support groups that I didn’t feel helped me or my son because I didn’t quite fit in. I felt bad even saying my son has Autism because I didn’t have to deal with many of the things they did. However, I did need help with my son and he certainly did as well. Thought it might help some of you out there.

Here is a video about an organization called SPARKS that is looking at a genetic reason for Autism.

Here are a couple of videos that show how AWESOME people with Autism can be and it is part of the reason my son calls my series Shock and Awe-tism:

Guess who didn’t know he had Autism til he was 70?!

Image may contain: 1 person, text

Autism Speaks
Autism Land on Facebook
The Autism Site Blog

Please do me a favor and share this post on your social media platforms and with anyone you know how might be struggling to understand their child. Or with anyone who has an Autistic child and is in need of some inspiration. God bless all the unique individuals out there!

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Real Autism Awareness: What to Look For

So, if you’re just joining me in this last of my four-part series on Autism, you can go back and read why I’m writing this, my experience, and what Autism is not. This post talks about what things you can look for to find if your child might be on the Autism spectrum.

There are two core symptoms that usually begin in early childhood (although they may not be recognized as such until later on). These issues persist as the child grow to some degree and interfere with daily life. The first is some social communication challenges and the second is repetitive behaviors. As I’ve said before in previous posts, these may vary in severity and differ from person to person.

Since this is a complex issue, it’s best to have your child formally assessed by a professional. This article is for informational purposes only. I’m no expert, but I feel strongly that if I had access to this information when my son was young, I could have helped him feel less frustrated and he wouldn’t have blamed himself for so long.

Here are some of the things you may notice in your child that could lead you to suspect he or she might be on the Autism Spectrum. I’m going to break them down into categories to make it easier to visualize. Remember that each person will be different. Not all Autistic people have all or even most of them. This is just a list I put together after having done some research in order to make it easier for you to determine if you should take your child to a professional to get more individual information.

Social and Communication Challenges:
Difficulty with verbal and nonverbal communication including:
* Gestures
* Spoken language (1/3 of Autistic people are nonverbal)
* Eye contact
* Facial expressions
* Lack of empathy
* Expressions not meant to be taken literally
* Recognizing emotions or intentions of others
* Expressing emotions
* Feeling overwhelmed in social situations
* Taking turns in conversation
* Gauging personal space
* Difficulty understanding other people’s feelings
* Preferring to play alone or difficulty playing with others
* Not taking part in “Make Believe” activities
* Not recognizing sarcasm or joking

Repetitive Behaviors:
* Rocking, flapping, spinning, running or walking back and forth
* Repetitively spinning wheels, shaking sticks, flipping levers
* Staring at lights or spinning objects
* Ritualistic lining up of objects or touching them in a particular order
* Narrow or extreme interest in specific topics
* Resistance to change or rigid adherence to routines
* Self-abusive looking behaviors like hitting themselves with objects

Other Behaviors and Behavior Patterns:
* Loss of previously acquired speech
* Preference for solitude
* Delayed language development
* Persistently repeating words or phrases
* Unusual intense reactions to sounds, smells, textures
* Abnormal body posture or walking on toes
* Flat tone of voice or monotonous speech
* Difficulty learning or learning disability
* Sleep disturbances (my son had waking nightmares)
* Avoiding or disliking physical contact
* Fussy eating
* Lack of coordination or clumsiness
* Aggressiveness
* Short attention span

Other Profiles:
If you haven’t read my son’s story in the first of this series, you can go back and read part one. However, my son is only one of many ways in which a person can be Autistic. So, I’ve found a page on Autism Speaks that gives various profiles of different Autistic kids that you can read through to get more of an idea of how Autism can manifest itself.

I hope this has helped you to get a bit of information on what Autism may look like. I pray you find your answers. Please comment below and let me know your situation. I’d love to hear from you.

Do me a big favor and please forward this blog post to all your social media accounts. I’d love some help getting the word out!

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Real Autism Awareness: What Autism Is NOT!

So, I’ve talked about what started me on this series and my experiences with my son. Now it’s time to talk about what Autism is NOT. The reason I bring this up is, as I said in my first article in this blog series, there are as many ways to be Autistic as there are Autistic people.

Aside from a profound lack of information on Autism in the public eye, there is a stereotype emblazoned in our minds by Hollywood as portrayed in television shows and on the big screen. If your kiddo doesn’t act like that, then Autism is quickly dismissed. That’s what I did. For 17 years, it never occurred to me that my son could be dealing with Autism. NEVER. In fact, we have family members who still don’t believe it because Chris doesn’t act like the typical Hollywood stereotype.

The Hollywood Autism Stereotype
Hollywood’s idea of Autism has always been limited to a five-year-old child who never looks anyone in the eye, doesn’t like to be touched, has no sense of humor, rocks back and forth, screams in public, and has no friends. This is NOT the only face of Autism.

Autism is a spectrum of many issues that come in varying degrees of severity. Some have a few of them. Others have more than a few. Some have the very same issues but on a completely different level of severity. I liken it to Fibro. Fibro is a collection of symptoms, but not everyone has the same ones nor do each have it to the same degree. My pain isn’t as high as some and fatigue is my most severe issue. Others have less fatigue but more pain and then there are all the other symptoms.

My son looks people in the eyes when he speaks, has a fabulous sense of humor, loves hugs, and is quite popular with serious minded people. On the other hand, he paces back and forth when he’s trying to focus or feel comfortable, has a hard time concentrating and focusing at times. As a child, he used to scream in public when he had too much stimuli, but he had been able to overcome most of that by the time he was a preteen.

Chris doesn’t give off Hollywood’s Autism stereotype. He, as most Autistic people do, has a unique set of skills and issues to work through. But there is one more major stereotype I’d like to address. Part of this has roots in the Hollywood image of Autism and part of it is a bit different.

Intelligence Autism Stereotype:
One of the reasons people don’t believe my son is on the spectrum is because he’s incredibly smart. I’ve never had his intelligence tested, but I’m fairly certain that a kid who taught himself to read at the age of three with the help of a computer program designed for third graders and was able, at nine, to beat adults at chess, is pretty smart.

The notion that Autistic people have to be unintelligent is plain wrong. The Autism spectrum includes an array of people all over the intelligence map. Some, like my son, are brilliant. Until recently when the Autism diagnosis was updated to include other forms of Autism, it would have been called Asperger’s. Because of the stereotypes and for clarity’s sake, I use the term Asperger’s or “On the Spectrum” when describing my son.

Now that you know what Autism isn’t…or rather what isn’t the ONLY description of Autism, I’ll be back next week to give you some things to look for that may indicate what Autism is in your child.

Please do me a favor and forward this blog post to all your social media accounts. I’d love some help getting the word out! I’m sure there are other moms out there desperately searching for answers as I was a few years ago.

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Real Autism Awareness: My Experience

Last week, I shared why I felt it was important for me to talk about the topic of Autism. This week, I’d like to give you a little background as to why this topic is near and dear to my heart. It’s personal for me because my son is on the spectrum and because I was entirely clueless for the first 17 years of his life!

My inability to understand him caused him great frustration and I wish I had known earlier so that I could have helped him. When I told him that this topic was on my heart to write about, I asked him if he would be okay with me sharing a bit of his story. Not only did he agree, but he was quite insistent that I share details so that other moms would have more information. With that in mind, I pray this series will help other moms who may not have any idea that their child is dealing with this.

So, a little background:

My son, Chris, was always an incredibly bright boy. He taught himself to read by using Jump Start Third Grade on the computer when he was only three years old. He spent six hours a day on that computer standing up so he could reach the keyboard. I had told him that this computer game was too advanced for him and that I didn’t have time right now to answer all his questions. So, he figured it all out on his own.

One day, I came downstairs to find he had the English subtitles on the TV. Thinking he had messed it up, I “fixed” it only to find them on again later. This went on for about two weeks until I finally asked him if he was doing this on purpose. He said he was learning to read. A while later, I came downstairs to find the Spanish subtitles on. I never again told him he couldn’t do something because it was too advanced!

Chris was always impressing adults. He played chess with adults when he was about 9. Once, at a party, I had a series of moms seek me out to tell me how articulate he was on a variety of topics. He had mastered just about every hand held and computer game he got his hands on.

On the flip side, there were things that he did or didn’t do that had us scratching our heads. While he was able to hyper focus on the details of a game, he was completely unaware of a big truck headed right for him in a parking lot. He could recite Sponge Bob episodes word for word having only heard them ONCE, but he couldn’t remember to bring down the book I asked him to get from his room. He’d go up to his room, immediately see something that he wondered about and I’d find him up there playing with the carpet fibers.

At two, Chris hated the feel of grass on his feet, loud noises, long pants, buttons on his shirts, and would only eat one food for breakfast, lunch, and dinner…until that food was replaced by another food. At three or four, he stopped speaking for eight months resorting to grunts and pointing. I was just about to consult his doctor when I turned the corner and found him talking to himself and looking at me as if the jig was up! At five or six, I still had to sit beside him when he was eating to remind him to chew and swallow so he didn’t get distracted by the fly on the wall and choke when he took a breath to ask me how it could stick on the wall like that. At about 10 or 12, he had no idea how to answer certain questions that seemed to be fairly obvious.

“What grade are you in?” was met with a long blank stare. Later, we found out it was because he had no idea how that was meant. The grade he was supposed to be in if he were in public school? The grade assigned to most of his homeschool courses? The grade of his highest course? He was in higher math and science courses in junior high.

While his oral communication skills were quite advanced, he wrote essays as if he were a first grader. His handwriting was awful. This didn’t seem consistent with other things I knew about him so I had a thought. I asked him to type his essay over. Same topic. Same prompt. Night and day difference! Not only was his sentence structure and grammar better, but his thoughts flowed and it was quite a persuasive essay! More on this at a later time.

By the time Chris was 17, we realized he was having trouble in two of his courses. At the time, I didn’t understand why he didn’t just tell me he was having trouble. I didn’t understand how to help him. He could memorize a ton of information, but couldn’t figure out how to organize his notes or focus or be able to pick out which items where important to study and which parts of the book were less likely to be on the test. Also he couldn’t manage to focus if the test was much longer than an hour.

This time my internet search found much more than just Sensory Integration Dysfunction. I began to suspect that he might have Autism. That lead me on a race against time to try to find someone, anyone, who would take on a child of 17! Most therapists took kids from four to about 12. I must have called every number I found in a tri state area who might help until I finally found someone who got him to a doctor who finally diagnosed him with what most people would know as Asberger’s.

The reason it was a race against time was that I was told that in order to qualify for accommodations for the SATs and at a university, he had to be diagnosed by the time he was 18. It usually takes 1.5 years to get in to a doctor who could do the diagnosis, but we were rushed through and he ended up being diagnosed just a few days shy of his 18th birthday.

This is, of course, not his whole story. I just wanted to give you some background so you know where I’m coming from. Had I known that he was on the spectrum when he was young, he wouldn’t have spent all those years finding work-arounds for his focusing and organizational issues where he blamed himself and thought it was all his fault. If I had only known earlier, I could have saved him the frustration of trying to figure out what people meant by the seemingly easy questions he was asked instead of feeling alone, like nobody understood him.

I’ll share some more about him in later posts, but for now, I’d like to say how incredible my son is that he was able to figure out how to do so well for so long with such struggles only he knew about at the time.

If you have a child you are desperately trying to figure out, please stay tuned to this blog for more on Autism. And please forward this blog post to all your social media accounts. I’d love some help getting the word out!

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Real Autism Awareness: Why I’m Sharing

There are some Facebook “awareness” posts that have bothered me for quite some time. First there was the one that had women posting a color: “Red” or “Pink.” Then, when friends would ask what that meant, they’d get a private message that said something like, “Aha! You should never have commented on my post! Now you have to post the color of your bra. Don’t tell anyone what it means. This is for Breast Cancer Awareness. Don’t spoil the fun!” Another more recent one was for Autism Awareness. This one just said, “There was a squirrel in my car!”

I never did understand how this promoted awareness if nobody knows what it means unless they comment. First, there probably isn’t a person on Facebook that has never heard of breast cancer or Autism. What they aren’t aware of, and what these posts never share, are any details of what to look for.

Since my son is on the spectrum and I would have been exceedingly grateful for any details when he was a boy, the next four posts will be devoted to what I call Real Autism Awareness and what my son says is Shock and Awe-tism because many of the things you’ll learn this month will be quite new to most of you. Autism is misunderstood by most and if I had been made aware of these things, my son wouldn’t have spent so many years frustrated and blaming himself.

Before I get started, I’d like to share a couple disclaimers:
1. I am by no means an expert in Autism. I’m just a mom who has some better insights into her own son and wants to help other moms with their children if at all possible.

2. Despite some of the comments I’ve gotten, my intention is not to “spoil the fun” and I do understand that most people posted these things thinking they wanted to help. I would just like to bring some real help…real awareness to those who need it because there is so little out there.

With all that being established, I’d like to give you the first and most important thing you’ll learn about Autism: There are as many ways to be Autistic as there are Autistic people! Autism isn’t just what Hollywood shows you in movies and TV shows. Autism is a spectrum of issues. Some Autistic people have some. Some have others. Some have a few. Some have many. Some have one that is a huge issue. Others may have that as a minor issue. Some Autistic kids will display certain things that make you think they are different and some, like my son, don’t and you’d never know it to look at them. But they struggle anyway and I’d like to help!

So stay tuned to my blog for three more important Real Autism Awareness posts. I hope you’ll share them all over social media and with your friends who may have a child who is unique…like mine! Now, THAT’s Real Autism Awareness!

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Life Beyond Surviving Update

Life has a way of twisting and changing, especially as you grow older and especially when you have chronic illness. These changes lead me to make the decision to return to posting here.

Change#1: I have been classified as Medically Frail.
The way some people collect stamps, I collect diagnoses. My latest ones are Essential Tremors (ET) and Esophageal Dysmotility. So, I shake, rattle, and have a hard time controlling my throat muscles when I need to swallow…at times.

Change#2: There’s been a computer substitution.
The two things that affect me the most right now are Fibro and ET. But it turns out having your fingers shake makes it a bit difficult to use an iPad and that’s how I was able to get online ever since my computer decided to retire. We had to get our son a new laptop to be able to continue to do well in the Film Department at Purdue so I have inherited his old laptop. So, this and future blog posts are brought to you by RAMbus Maximus. RAMbus Minimus, my iPad, is taking a much needed vacation.

Change#3: The Facebook Shuffle.
For almost ten years, I’ve been growing a fan page over on Facebook I named after my blog, For the Love of Purple. When I transitioned to my new laptop, Facebook decided I needed to prove I was me in order to continue to have a voice to over 9100 Facebook fans. Unfortunately, Facebook wouldn’t send me the codes they want me to input and I tried so many times, it has locked me out until such time as Facebook decides I am worthy. I’m afraid my research indicates that it will probably never find me worthy and come June 3rd or thereafter, I will no longer be allowed to post as Admin.

Change#4: I feel God leading me in this direction.
After each of these changes, I have felt more strongly about sharing information, support, inspiration, and humor to uplift those who struggle with chronic illness and conditions. In fact, something that was being posted on Facebook prompted me to want to include Autism in that mix as my son has struggled with his Autism and I find very few people really understand it. To that end, I’ll be starting off this month with a short four part series on what Autism is and what it isn’t. I pray that this short series will help other moms who, like me, had no idea the struggles their child faces might be Autism.

I have a heart to help others who feel alone, struggle with conditions they don’t fully understand, or just feel like they need a place to be uplifted. I’d appreciate your help. If you find my posts helpful, would do me the honor of sharing the blog posts with others who need some inspiration, comfort, and love? Thank you!!

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I’m taking a blog hiatus

Just a quick note to let you know that I’ll be taking some time off from my blogs and newsletter for the next several months while I concentrate on my health and a project my husband and I are working on together.

I recently added a few new diagnoses to the growing list. Last year I was diagnosed with Essential Tremors and just recently with an esophageal issue. It’s going to take me some time to find some treatments that can help, especially since my fibro has kicked up another notch.

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