2020: Back to Basics

I thought I’d start off this year getting back to basics. However, in case you’re just joining me at Life Beyond Surviving here in 2020, I thought I’d start at the beginning of how and why I started this blog. I’ve always sought to be understood because I’ve never been able to fit in with the crowd. My life has always been a bit quirky. I guess you could say I’m not your average Jo…Jo!

I’ve always been different, weird if you will. So, I understand how important it is to be supported for who you are and the different circumstances you find yourself in. That is the essence of chronic illness, isn’t it? We don’t feel most people get us. Sometimes when you have been through so much you find yourself asking God why. Why me? Why so much hardship? Why can’t I just be normal?

Why? In my case, I think it’s because I can help others…and I have never been normal…

I’m only 5′ tall, wearing children’s shoes, hats, and gloves. I used to sit on a telephone book in order to see over the steering wheel.

I was born to Atheists of Jewish descent, married a nonpracticing Catholic and became a nondenominational Christian because of Amway meetings and a Jehovah’s Witness that came to my door.

I’m an older mom having had my first at 27 and my second and last child at 36. I didn’t vaccinate my son though I did my daughter. Both my kids are incredibly intelligent. My son is that as well as Autistic or what they used to call Asperger’s.

I chose to homeschool my kids and for seventeen years we fielded all sorts of questions about socialization and getting into college. In case you’re wondering, they both were able to hold their own during the inevitable inquisitions from cable guys to relatives and went on to elite universities.

I’m weird in my medical history as well. Having had Fibro since I was a teenager and several other issues shortly after giving birth to my son at 37, I’m all too familiar with the misunderstandings that chronic illness has in the general community.

In addition to Fibro, I’ve struggled with perimenopause hot flashes for over twenty years. I also have Essential Tremors, Arthritis, Osteoporosis, and I can’t even remember all the rest. In addition, I’ve had nine surgeries in my lifetime. Five of them in a 2.5 year period of time including one due to cancer.

I’ve been married 33 years. I’ve been a mom for 30 years, I homeschooled for 17 years and I’ve had chronic illnesses spanning most of my life. I have a wealth of knowledge about several topics and how to do them with chronic illness.

But do not forget to do good and to share, for with such sacrifices God is well pleased. ” -Hebrews 13:16

My heart is to share my knowledge and support others who are struggling with chronic conditions. My mission is to help them see the joy, the light, God’s light not just at the end of a tunnel (trial) they might be going through, but INside the tunnel (during the trials that are so long they don’t end this side of heaven).

Autism Bonuses

I had intended to make this a four-part series, but after completing the last part of what my son calls Shock and Awe-tism, I wanted to include some links for more Autism information and some inspiration as well as some ideas and food for thought.

Sometimes a pet can help calm…

Here’s an article about a book advocating the benefits of not keeping your ASD child in their comfort zone. We did this a bit with our son and it seemed to work for him. He would scream and hold his ears when in situations that were loud. Loud to him was a restaurant or church service. Sometimes we had to be in a loud environment and we tried to calm him by giving him a handheld electronic game to help him focus and that seemed to tune out the outside noise.

Once when he was very young, we went to a Fourth of July Fireworks show. On the way home he said, “It changed my brain.”

Here’s what the article says about this book: “A new autism book, The Loving Push, encourages parents to gently and lovingly nudge children on the spectrum to perform activities outside their comfort zone. This book is written by Dr. Temple Grandin, a leading spokesperson on autism, as well as psychologist Debra Moore.

1st Woman With Autism Passes Bar!

Dear Mom of High Functioning Autism article rang true for me with my son. I found many support groups that I didn’t feel helped me or my son because I didn’t quite fit in. I felt bad even saying my son has Autism because I didn’t have to deal with many of the things they did. However, I did need help with my son and he certainly did as well. Thought it might help some of you out there.

Here is a video about an organization called SPARKS that is looking at a genetic reason for Autism.

Here are a couple of videos that show how AWESOME people with Autism can be and it is part of the reason my son calls my series Shock and Awe-tism:

Guess who didn’t know he had Autism til he was 70?!

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https://www.facebook.com/AutismTalk/photos/a.413450702052380/2213450025385763/?type=3&theater

Links:
Autism Speaks
Autism Land on Facebook
The Autism Site Blog

Please do me a favor and share this post on your social media platforms and with anyone you know how might be struggling to understand their child. Or with anyone who has an Autistic child and is in need of some inspiration. God bless all the unique individuals out there!